What's wrong with me? Endoscopy/colonoscopy normal this time. Would the capsule endoscopy show something?
I'm a 15 year old female and have been very sick for almost 2 years now. I have been through tons of blood, urine, and stool tests. 2 Endoscopy/colonoscopy, abdominal ct, upper gi, and sweat test. I have also been psychologically cleared and it's not a nerve problem.
Here are my symptoms ~
* severe abdominal and stomach pain (2 years off and on for 5 years)
* severe nausea (5 years)
* severe weight loss (now controlled by night time ng feeds)
* night fevers (1 year)
* bad headaches when I wake up (6 months)
* diarrhea 20 times a day (now constipated since tube feeds started but comes back when off them. 2 years)
* severe rectal bleeding even in my pants (last few weeks)
* vision loss in right eye when I wake up (last couple weeks)
* fatigue (2 years)
* dizziness (this past week)
* joint pain (last 6 months)
* mouth ulcers (2 months)
I was diagnosed with crohn's, then i wasn't, then maybe, now probably not. I have already been tested for food allergies, celiac, parasites, infection, cystic fibrosis, ect…
My second GI doc once again diagnosed me with ibs and an eating disorder, which are both major misdiagnosis. He said that down the line he would do capsule endoscopy if it doesn't improve. I'm just so tired of being sick!!! Am I just crazy and there is nothing wrong with me???
My parents have Kaiser insurance (we live in northern ca) but none of the doctors can help me. Is their any way to get financial assistance at a non-kaiser hospital?
Could I have a brain tumor (no head scans) or just crohn's in my small intestine?
Most of my dad's relative's have died (or dying) of cancer. My dad will only have one brother left. Colon cancer, pancriatic, and brain cancer are some of the types.
Any help is appreciated! Thank you!
Tags: blood urine, capsule endoscopy, cystic fibrosis, severe nausea, brain cancer, brain tumor, dying of cancer
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